Sunday, September 6, 2015

Wheelchair Defect vs Prostate Cancer Patient

I wrote this letter to the wheelchair manufacturer that supplied my husbands wheels during his prostate cancer battle. I have submitted this letter along with many photos to the company. I have yet to hear back from them since they said they will contact me asap.

To Wheelchair Manufacturer,

I will start off by stating that I commend your products that we have used so far. The wheelchair we have used for the past 4 years has been an outstanding companion to my husband and myself. It is reliable and easy to manage. It is a bit heavy for me to lift, but I make do.

The walker my husband uses has been a godsend. It amazes me how just a few pieces of metal put together can hold up his weight and allow more freedom and flexibility. In the 3 years we have owned the walker, I only had to replace the feet once. The walker is a well built product.

The product I have a major complaint about is (insert product name).

The insurance company sent my husband the (insert product name) wheelchair a couple of years ago. Brand new. While this wheelchair is lighter and cheaper made, we didn't have a need for it, but I kept it around just in case. That "just in case" happened on May 18th, 2015.

First, I would like to share a bit of history about my husband and myself. He was diagnosed in 2008 with metastatic prostate cancer. It has been one hell of a roller coaster ride. Non-stop, constant treatments helped keep him alive. We are thankful for those treatments. I am his sole caregiver and trust me when I say that I take my job VERY seriously. I am like the mama bear that will defend to the death, luckily I never had to go to that extreme, but my temperament has been very close.

Cancer almost took him quite a few times, but it seems to be that he has more lives than a cat. Most likely a mountain lion. Dave is a brave man. A true fighter. He never complains through any of his treatments. He rarely succumbed to the side effects of the treatments. Like a good soldier, he marched forward and I held him up.

Well, on May 18th...I failed. Actually, you and I failed. While I was trying to guide him from the wheelchair to the bed, we had a major problem. He had been having some slight leg edema issues and needed assistance getting out of the chair. When he stood up, the footrest latch caught his leg or possibly his shorts, we are not sure, what I am sure of is the next few moments were pure hell. I heard and felt his scream of agony.

I looked down and noticed the blood quickly pouring from his leg. I immediately sat him back down. I elevated his leg and also searched for a towel to cover the gash to his calf. I completely lost it. Amongst the blood, I saw flesh and a sight no one should ever witness, especially someone who has given 7 years of her life to keep him alive. I sure as hell wasn’t going to allow a wheelchair to take him down.

You see, along with his cancer comes low hemoglobin and low platelets, these issues do not affect his balance or gait, but could cause him to bleed to death on the spot. Due to low hemoglobin, his blood levels could plummet and he could go into cardiac arrest very quickly. I sure hope you understand where I am going with this. Due to a unsafe latch on your wheelchair Dave could have lost his life!

Like I said, I take my job VERY seriously and I was NOT about to allow his death certificate to state "Killed by Wheelchair." Imagine all of this going through my already overworked brain in less than 30 seconds before I quickly phoned my neighbor while also tending to the bleeding. She arrived in less than a minute and called 911. The paramedics arrived in less than 4 minutes.

One paramedic asked if I needed oxygen because I was clearly having a panic attack. I said no, just help my husband. They were so gentle with Dave. They tended to his wound, calmed me down and had us at the Emergency Room in less than 30 minutes. This is where we spent the next 25 hours.

While the ER doc tried his best to repair the wound, he had much difficulty and had to reach out to wound specialists on how to proceed. He was shocked and bewildered on how a wheelchair mechanism created such a mess. Remember that he is an ER doctor who has already seen unimaginable things. The doctor placed 9 stitches but the top section of the wound was not repairable. He had to leave that section of the wound open. He did his best. Dave was still in shock of everything that had just happened.

The ER doctor ordered some labs and just as expected, his hemoglobin had dropped to a dangerous low of 6.7. Dave was admitted to the hospital and a blood transfusion was given. The wound doctor came to see us in our room a few hours later and he shared more bad news with me.

Due to so much missing skin, even though the ER doctor did the best he could to repair the wound, the skin that was there will not survive. It will turn black and will fall off, but by keeping his body as healthy as possible while in his condition, the wound should eventually heal on its own. Unfortunately, it will leave a large scar. Just like all of the other mental and emotional scars that we have acquired during our cancer journey. 

Dave now has a home health nurse who comes to treat his wound for him. When she isn't here, I tend to the dressing and each time I change the dressing, the nightmare comes flooding back. What could we have done differently to have avoided this unfortunate accident? Nothing that we haven't done repeatedly over the years. 

We did nothing out of the ordinary. Dave had some slight brushes with the latch, but no injuries. He also had some slight brushes with the actual footrest, which by the way, PLEASE add a smooth rubber border to those things. They are just as lethal as the latch to remove the footrest. The latch is a deadly weapon.
I have since placed that wheelchair in the garage to one day possibly dismantle it and dispose of it. I no longer will use that wheelchair.
We did go back to using our trusty and faithful companion, but each time I see the latch on either chair, the horrible memories come flooding back. Same latches are on both. Each time I look at my bedroom carpet, where the incident occurred I see the faint reminders of the night from hell. Suffice to say that was a horrible experience. After the past 7 years, how one faulty latch could cause such havoc and set us so far backwards in our cancer journey is beyond my wildest imagination and trust me, I have a wild imagination. 

I ask that you take our pain and suffering into consideration. We have had years of pain and suffering but we always remain optimistic. So many other people have it far worse than we do.

By now, you should have seen the photos of the destruction and aftermath of Dave's leg. Consider our history. Consider how this could be avoided in the future and consider placing a smooth covering on that darn latch and the border of the footrest. Please help others avoid having a similar horrible incident.

I close this letter by stating that as a wife, caregiver, mother, grandmother and blogger that I go above and beyond to use my voice to right a wrong. We are on this earth to help one another, not hurt one another. I believe your company is helping others, while faulty equipment is also hurting them.

Update as of July 4th, 2015 – Nearly two months after the accident
My husband's wound is still not healed. He has been treated by home nurses with three treatments and antibiotics twice for infections. He was placed on Hospice care on June 30th because there are no more treatments available for him. While trying to keep him comfortable during the last few weeks of his life, we had to also care for the wound. The wound that never should have happened but due to poor workmanship, it painfully did.

My husband's prognosis is one to two weeks. I will still care for his wound, but it will never fully be healed. As he peacefully rests to await his demise, I plead for him to eat one more bite of food or take another sip of water. Sadly, he doesn't have the energy to do so, he just sleeps. The moment when I tend to his wound, I then know that he hasn't passed on yet because he grimaces, moans and cries in agony. Cancer might be painlessly killing him, but the wound is causing the pain during his end of life. Seems like it might be infected again, but does it even matter at this point? A damn shame. I truly hope your company has learned a lesson.

Update as of August 17, 2015: My husband passed away on July 6, 2015, peacefully from cancer, not peacefully from his leg wound.

Company motto: "We exist to enhance the quality of life of the people we touch." How ironic.